Extraordinary! A Book for Children With Rare Diseases
NNPDF is excited to share to that Extraordinary! A Book for Children with Rare Diseases, written by Evren Ayik and his Mom, Kara, is now available for purchase online. This book, written as an expression of support for children who live with the challenge of growing up with a rare disease, captures the lessons Evren learned beginning at age three when he was diagnosed with ASMD. Click here to learn more. Congratulations to Evren and Kara! Well done!