Information and Educational Sessions: ASMD & NPC Clinical Trial Updates, Community Panel Discussion, Newborn Screening, and more*
Family Services Break-Out Sessions: Mentor-Mentee, NPC Adult-Onset, NPC Juvenile Onset, ASMD, Siblings, Teen Patient to Adult Patient Support, Families After Loss, Extended Family and more*
Optional Family Advisory Working Groups: NNPDF will host Family Advisory Working Groups with Industry Partners to take place prior to the start of our Family Support & Medical Conference.
Family Advisory Working Groups allows for communication between NPD Families, and the pharmaceutical industry to provide guidance on the patient and family experience. Participation is by application only and is limited to adults living in the US. Stipends of up to $350 will be paid to participants for their involvement.Click Herefor complete details.
Virtual Activity Zone: Complimentary and fun virtual activities with Cora Sterling for children and young adults of all ages. Secure password protected Zoom meeting allows for safe and fun interactions.