NPD individuals and family


Medical Prof/Researcher



Your Registration Includes:

Information Sessions: Keynote Address from the US Food & Drug Administration, ASMD & NPC Clinical Trial Updates, COVID19 Impact & Effects on the Niemann Pick Community Panel Discussion, Newborn Screening, and more*

Family Services Break-Out Sessions: Mentor-Mentee, NPC Adult-Onset, NPC Juvenile Onset, ASMD, Siblings, Teen Patient to Adult Patient Support, Families After Loss, Extended Family and more* 

Optional Family Advisory Working Groups: NNPDF is organizing Family Advisory Working Groups with Industry Partners to take place on prior to the start of our Family Support & Medical Conference.

The Family Advisory Working Groups are a way to provide a voice for communication between patients, caregivers and their families, and the pharmaceutical industry to provide guidance on the patient and family experience. Participation is by application only. Stipends of up to $350 will be paid to participants for their involvement. Click Here for complete details.

Activity Zone: Done Virtually - Complimentary activities for children and young adults of all ages



*Topics subject to change

The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research. Founded in 1993, NNPDF serves families throughout
the nation at all stages of their Niemann-Pick journey. The NNPDF is the US member organization of the International Niemann-Pick Disease Alliance (INPDA).

PO Box 49
Fort Atkinson, WI 53538